Resources

This is a page I am creating because it was on a site I found through google searching for more information on semilobar holoprosencephaly. I found Jaxton’s story, and on that blog there was a recourse page. I would spend a lot of time trying to find just the right thing, like right song or website where I could connect to people. Finding a resource page made by another mom was so helpful and more personal.

I hope that this page serves people well.

Some blogs:

Jaxton’s story

http://angiesmithonline.com/2008/01/the-beginning-of-the-story/

Books to read:

This book helped me in more ways than I could imagine

I have read this one, and it’s great

Useful sites:

http://www.inspire.com, but there is a group for genetic and birth defects, so you can connect with other people going through tough things http://www.inspire.com/groups/genetics-and-birth-defects/

this is a link to a site that has a list of do’s and don’t’s towards those who have lost an infant: http://www.nowilaymedowntosleep.org/helping_the_bereaved/

This site is about genetic tests during pregnancy and what they mean and do. With so many terms and tests being thrown around this site was a helpful first step. http://www.livestrong.com/article/123788-genetic-tests-during-pregnancy/

Foundations:

http://www.nowilaymedowntosleep.org/home/

Healing or beautiful songs:

I will carry you, by Selah

Held, by Natalie Grant

Heaven is the face, by Stevn Curtis Chapman

Glory Baby, by Watermark

Smallest Wingless, by Craig Cardiff

In God’s Time, Randy Houser

Better than a Hallelujah, by Amy Grant

Hold my heart, by Tenth Avenue North

Homesick, by MercyMe

Just a small video. A video that just proves even more that there is a God and gives hope.